Spinal muscular atrophy patients have urged the Hong Kong government to expand subsidised medicine options for adults to increase their chances for a better quality of life, with some saying their condition deteriorated after growing up without affordable care.
Lui Man-lam, president of the Hong Kong Neuro-Muscular Disease Association, said at a press conference on Sunday that while oral medicine subsidies for those aged 25 or above were rolled out early this year, adult patients still lacked…